Since being diagnosed, i’ve noticed that there isn’t a lot for people in the mild to moderate stage. There are dementia cafes of course, but these seem to suit carers more than the people with dementia, we just sit there smiling when looked at while our carers and spouses chat away to each other, sharing there experiences and so on.
If one looks around the room you soon see the ones with dementia, the quite ones, the people that find it so hard to filter the back ground noise as the volume gets louder, so much so that one soon finds it easier to just be quite. Why oh why don’t people just take the time to listen to what WE want, cafés should be held in two rooms, one jointly for both parties and the other room for just people with dementia, where it’s quieter, where we can chat unprompted to each other, where we can have some peer support, where we can be truthful and share with out upsetting others that don’t want to hear.
Two hours ! A cafe lasts, usually once a month. We need at once a week, a crèche of sorts, not PC I hear you say, but that’s what’s needed especially for the mild to moderate people out there. We just need somewhere secure with a toilet , a kitchen and one helper, there could be a charge which I know most would pay ! There are 100s of thousands of us in the same positition with nowhere to go or nowhere to be left ! We could popin for an hour or for the day. We could practically run the place our selves, some where we could chat and share, watch tv, play cards, draw , we would arrange our own activities not led by someone who thinks they know what we want !
no one leaves till they are collected, could it be so easy, there are 1000’s of empty buildings in every major city in the uk .
Some one could even make a lot of money out of it, so we’ve just invented adult care, a youth club for adults of any age !
I would just like somewhere to go when I need time out from being myself, from being me! It’s bloody hard work ! It’s hard work for those around me too, my wife for instance, she wouldn’t say it but I’m sure a day off to herself would be nicer if she didn’t have to leave me in an Elderly Mental Infirm Care Home ! What do you think ?
So what’s the alternative, as I said earlier , there is the memory cafés ! And day care in an EMI ! NOBODY SHOULD HAVE TO SIT AND LOOK AT THEIR FUTURE ESPECIALLY WHEN THE FUTURE IS SO BLEAK AND SO HORRIBLE !
Yes we can live with dementia, yes we could even live well ! Yes we could live even better !!
Sorry about spelling etc but it has started to become quite difficult, what you see is what I have ! No less and definitely no more x