What do researchers need to know? Advice from people living with dementia – a two part special – DEMENTIA RESEARCHER
— Read on www.dementiaresearcher.nihr.ac.uk/what-do-researchers-need-to-know-advice-from-people-living-with-dementia-a-two-part-special/
BBC Blogs – About the BBC – Panorama – Living With Dementia: Chris’s Story
Panorama – Living With Dementia: Chris’s Story
— Read on www.bbc.co.uk/blogs/aboutthebbc/entries/c0868d6c-41be-4557-8f74-ff7aa9c5c131
Munchausen by dementia
We are definitely not representative
Nope. You’re right.
We are not typical of people living with dementia.
We are not the usual people who visit GPs and clinics for diagnosis.
We should be ashamed of such hubris, standing up and talking for people living with dementia.
Of course we have absolutely no right to claim that we know what it’s like.
And indeed, it is highly probable that we have a wrong diagnosis, since we can obviously talk coherently about our lives.
When we go up on stage you should not listen to us.
When we describe our symptoms, don’t believe us.
We’re lying. Making it up.
We all have a psychiatric condition that makes us need to have an illness to feel important.
Munchausen’s?
Let’s face it; we are all deluded seekers of headlines and self aggrandisement.
I do agree with you…we should be sitting at…
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Munchausen by dementia
This is how we are made to feel when in the early and middle stages of our diagnosis
Salzburg Statement on Innovations in Dementia Care and Dementia-Friendly Communities
Salzburg Statement on Innovations in Dementia Care and Dementia-Friendly Communities
— Read on mailchi.mp/salzburgglobal/dementiacare
https://t.co/rr7xMuyjpfMembership now open to all those living with a dementia diagnosis in England, N.Ireland and Wales@DementiaVoices @AlzSocCymru @alzheimerssoc @AlzSocNI @hayology @AlzSoc_Adele @JeremyHughesAlz— 3Nations Dementia Working Group (@3NDWG) September 10, 2018
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The value of being involved in research | ROADMAP
The value of being involved in research | ROADMAP
— Read on roadmap-alzheimer.org/news/after-diagnosis-research-gives-hope-interview-with-chris-roberts-and-his-wife-jayne/
Patient engagement in dementia: extra support leads to informed contributions – PARADIGM
Patient engagement in dementia: extra support leads to informed contributions – PARADIGM
— Read on imi-paradigm.eu/patient-engagement-in-cognitive-impairment-extra-support-leads-to-informed-contributions/
Dementia survivor, so far..... 