The value of being involved in research | ROADMAP
— Read on roadmap-alzheimer.org/news/after-diagnosis-research-gives-hope-interview-with-chris-roberts-and-his-wife-jayne/
Patient engagement in dementia: extra support leads to informed contributions – PARADIGM
— Read on imi-paradigm.eu/patient-engagement-in-cognitive-impairment-extra-support-leads-to-informed-contributions/
Join the 3 Nations Dementia Working Group | Alzheimer’s Society
— Read on www.alzheimers.org.uk/join-3-nations-dementia-working-group
3NDWG Newsletter 02: July & August 2018
— Read on rxvj.mjt.lu/nl2/rxvj/tvq.html
Alzheimer’s Society’s Dementia Friends programme is the biggest ever initiative to change people’s perceptions of dementia. It aims to transform the way the nation thinks, acts and talks about the condition.
There has been a lot of moaning on social media lately,
Usually by the same people, again and again!
All about this very successful program.
Moaning about its title,
“we shouldn’t name the disease, “
“who’s it friendly for, “
“we shouldn’t say friendly, “
“what are the outcomes, “
“where are the outcomes.”
All the suggestions of the different titles it could have,
moan, moan, moan…….
Nothing ever seems to be good enough for some, no matter what people do or how hard they work!
Majority of these moaners complain continually but never see their own short comings, their own problems and what they do so wrongly!
“We want more awareness! “
“People need to understand “
“The conversation needs to be had”
“Lack of knowledge promotes fear”
The Dementia friends information sessions came about and has made such an impact.
It’s a great introduction to break some of the myths and misconceptions about dementia.
Majority of sessions are hosted by volunteers.
2.5 Million people now know more about dementia,
There are no numbers of the people that have then received information from the above.
It’s been taken to schools for all ages.
It has opened up conversations that were much needed.
It has helped so many !
It has now been taken to about 35 countries, where it’s been very well received in all.
People with and without a diagnosis, have been helped and informed, lives have been changed.
Age groups reached have been from 5-100 years old.
I do actually agree that maybe it could have had a better title, what title I’m not sure, but whatever it’s called, these awareness sessions really work.
It’s branded now, it’s known!
Friends, friendly, community, communities!
These are the words that are most moaned about, but aren’t these words exactly what it is all about.
We live in communities, we all need friends, we are social beings, we want a friendly world!
Yes, after the fact, with hind site, everyone could probably come up with a better or different phrase, a better or different word or title,
but surely! If it’s working, stop your incessant moaning,
Especially if the moaners themselves won’t make change,
Especially if the moaners don’t actually do anything on the ground themselves.
Lots of organisations use the same approach and a similar title,
Because it works!
Friends of the Earth.
an environmental campaigning community dedicated to the wellbeing and protection of the natural world and everyone in it.
Friends of the Peak District.
is an independent charity that protects and safeguards the landscapes of the Peak District National Park against developments which threaten its beauty
Friends of the Elderly.
gives older people the opportunity to live fulfilled, respected lives through exceptional levels of care.
Quakers are members of a historically Christian group of religious movements formally known as the Religious Society of ‘Friends’ or ‘Friends’ Church.
Friends United Meeting.
is an association of twenty-six yearly meetings of the Religious Society of Friends in North America, Africa, and the Caribbean.
Evangelical Friends Church
is a branch of Quaker yearly meetings around the world that profess evangelical Christian beliefs.
Friends of Prostate Sufferers.
Prostate Cancer Support Group
Friends in Need.
A way for people affected by depression to meet online and in their local area to share support.
Friends Of Parkinson’s.
a non-profit organization that provides a resource center, outreach awareness, and support groups for people with Parkinson’s.
is a nonprofit organization dedicated to improving the quality of life for female cancer patients. Our organization teaches friends and family specific ways to offer support.
Apparently it’s ok and acceptable to be friends, make friends and have friends!
And the best bit…….
It’s ok to be friendly, to use friendliness to help, to educate and inform!
Stop the moaning and just get on with something else if you don’t like what you see or hear,
when it’s actually working.
When It’s making a difference to many lives, and spreading globally!
Does the title really matter ?