What do researchers need to know? Advice from people living with dementia – a two part special – DEMENTIA RESEARCHER
— Read on www.dementiaresearcher.nihr.ac.uk/what-do-researchers-need-to-know-advice-from-people-living-with-dementia-a-two-part-special/
Tag Archives: being understood
Join the 3 Nations Dementia Working Group | Alzheimer’s Society
Join the 3 Nations Dementia Working Group | Alzheimer’s Society
— Read on www.alzheimers.org.uk/join-3-nations-dementia-working-group
SALZBURG GLOBAL STATEMENT
Living with Dementia – Chris’s Story – Video Dailymotion
Watch Living with Dementia – Chris’s Story by communityvoicehealth on Dailymotion here
— Read on www.dailymotion.com/video/x4g6xqu
Dementia friendly Communities
EVERYONE HAS HEARD THE WORD DEMENTIA, BUT THE TROUBLE IS, NOT MANY UNDERSTAND IT ! …….”INCLUDING ME AND MY FAMILY BEFORE I WAS DIAGNOSED,
BUT, WITH UNDERSTANDING, FEAR CAN BE REDUCED,
ITS THE UNKNOWN ONE FEARS THE MOST !
THAT’S WHY A DEMENTIA FRIENDLY COMMUNITY SHOULD BE BASED FIRSTLY, ON EDUCATION,
EDUCATION WHICH SHOULD START IN SCHOOLS SO NO MORE
MIS-UNDERSTANDING AND STIGMA ABOUT THE ILLNESS WOULD THEN EXIST, CHILDREN ARE OUR FUTURE AND AN IMPORTANT ASSET, THEY SHOULDN’T BE LEFT OUT OF A DEMENTIA FRIENDLY COMMUNITY.
THEN START TO EDUCATE THE SHOPS AND BUSINESSES, THE BANKS AND POST OFFICES, NOT JUST THE OWNERS BUT ALL THE STAFF,
THEN THE PUBLIC TRANSPORT STAFF, TRAINS, TAXIES AND BUSES !
IT IS EASIER TO START WITH THE SMALLER, INDEPENDENT BUSINESSES, THEN THE LARGER ONES, THE CORPORATE MULTI-NATIONALS WILL FOLOW TOO.
MOST PEOPLE WITH DEMENTIA LOSE THE CONFIDENCE TO LEAVE THEIR HOMES ONCE DIAGNOSED……….I KNOW I DID !
THEN GO INTO THE CARE HOMES, THE NURSING HOMES, SURGERIES AND HOSPITALS, EDUCATE ALL !
THEN THE PUBLIC……… BECAUSE WITH EDUCATION COMES UNDERSTANDING,
WITH UNDERSTANDING COMES SUPPORT AND CARING
KNOWLEDGE IS A POWERFUL TOOL !!
THEN THE RESCUE SERVICES, THE POLICE, AND COUNCILS,
WORKING EVER UPWARDS AND OUTWARDS.
THEN COMES CHANGES TO THE ENVIRONMENT,
WORKING WITH THE ARCHITECTS, ESTATE MANAGERS AND THE BUILDERS.
LOOKING AT THINGS LIKE SIGNAGE, LIGHTING AND LIVING ACCESSORIES,
ALSO THINGS LIKE MARKING STEPS, ESCALATORS AND PAVEMENT EDGES ETC,
ALL THE THINGS THAT CAN SUPPORT SOMEONE AND GIVE THEM CONFIDENCE WITHOUT TAKING THEIR DIGNITY AWAY
A BIG THING NEEDED IS INCLUSION, PLEASE ASK US WHAT WE NEED, WHAT WE WANT, IT SHOULD BE NOTHING ABOUT US WITHOUT US !
WE ARE, AFTER ALL, THE EXPERTS IN LIVING WITH DEMENTIA, WE ARE THE EXPERTS BY EXPERIENCE,
US, AND OUR CARERS, AND FAMILY MEMBERS.
YOU HAVE A WEALTH OF INFORMATION BETWEEN US !
PLEASE DONT FORGET THAT DEMENTIA IS A DISABILITY,
A DISABILITY YOU CANT ALWAYS SEE, THERE ISNT A LABEL
SO IF YOU GET IT RIGHT FOR THE PERSON WITH DEMENTIA THEN YOU GET IT RIGHT FOR EVERYONE !
ITS ABOUT PUTTING COMMUNITY SPIRIT BACK, SOMETHING THAT CAN BE SADLY LACKING, IN LOTS OF PLACES THESE DAYS.
ALL THESE THINGS ARE WHAT IS NEEDED TO MAKE GOOD PLACE FOR SOMEONE WITH DEMENTIA,
DEMENTIA FRIENDLY COMMUNITIES SHOULD BE ABLE TO SUPPORT EVERYONE AT ALL AGES AND AT ALL STAGES OF THE ILLNESS,
MAINTAINING THEIR CONFIDENCE AND BOOSTING ONE’S ABILITY TO MANAGE THEIR EVERY DAY LIFE
Order ! ,Or not !
Sorry if my blog doesn’t have any order, but neither has my life. So as I remember, as I will write, when I have a good day, I’ll write 😳😁😊
Dementia survivor, so far..... 