Tag Archives: Alzheimer’s

Dementia rights ! 

DEMENTIA RIGHTS

DEMENTIA IS A DISABILITY,
YET OUR NEEDS ARE HARDLY EVER MET IN THE SAME WAY AS OTHER DISABILITIES

HOW ARE OUR RIGHTS BEING MET WHEN WE ARE LITERALLY ALL BUNGED INTO THE SAME POT, THE ILLNESS IS AS INDIVIDUAL AS WE ALL ARE

HOW ARE OUR INDIVIDUAL AND BASIC HUMAN RIGHTS BEING MET HERE

WE ARE USUALLY ‘LET GO ‘ FROM WORK IN THE TIME OF PRE DIAGNOSIS WHILST WE ARE NOT IN A FULL CAPACITY OR IN A PLACE TO MAKE AN INFORMED DECISION, WITH LITTLE OR NO INFORMATION

HOW ARE OUR RIGHTS BEING MET HERE

SO LATER, WHEN MORE INFORMATION DOES COME, WHEN IT DAWNS ON US THAT ITS NOT ‘DEATH ON DIAGNOSIS’ THAT WE COULD HAVE CARRYED ON WORKING,
THAT WE WERE STILL CAPABLE OF SO MUCH MORE THAN WE WERE TOLD
WE CAN’T THEN FIGHT TO GET OUR JOB BACK EVEN IF WE WANTED TO

WHERE WERE OUR RIGHTS THEN

WE ARE PRESCRIBED WITHDRAWAL, VERY EARLY ON, TOLD WE CANT DO ANYTHING ANYMORE, TO GET OUR AFFAIRS IN ORDER.
HOW IS THIS GUARANTEEING OUR RIGHT OR RIGHTS TO PARTICIPATE AND CONTRIBUTE TO SOCIETY

HOW ARE OUR RIGHTS BEING MET HERE

SERVICES ARE VERY SKETCHY, A POSTCODE LOTTERY OF SORTS, USUALLY INAPPROPRIATE, AND MOSTLY PROVIDED BY STAFF THAT HAVE LITTLE OR NO KNOWLEDGE OF THE ILLNESS
HOW ARE OUR RIGHTS BEING LOOKED AFTER THEN, COMPARED WITH OTHER DISABILITIES

WE MUST ALSO NOT FORGET ABOUT THE RIGHTS OF PWD IN RESPECT OF THEIR CULTURE, THEIR BELIEFS AND THEIR RELIGION

ARE OUR RIGHTS BEING MET HERE

WE HAVE HEARD ABOUT THE WORLD COUNCIL FOR DEMENTIA, ANOTHER COLLECTION OF PEOPLE DOING THINGS ON OUR BEHALF, AMAZING, GREAT, WHERE IS OUR INCLUSION, WHERE ARE THE FOLK WITH DEMENTIA ON THESE BOARDS, AT THESE CONFERENCES
WHERE ARE OUR RIGHTS THERE

IT SHOULD ALWAYS BE “NOTHING ABOUT US, WITHOUT US”

PEOPLE WITH DEMENTIA SHOULD NEVER LOSE THEIR RIGHTS AT THEIR DIAGNOSIS
BUT ACTUALLY HAVE MORE ‘RIGHTS’ AS IT IS OR AT LEAST SHOULD BE,
A RECOGNISED DISABILITY

BUT IN REALITY MOST OF THESE THINGS ARE NEVER MET
ARE OUR RIGHTS BEING MET AT ALL ??

……………..

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Reflecting on my year as a Dementia Advocate 2014

Dementia friends Champion Training :

After my diagnosis we knew nothing about dementia, We thought how many people knew nothing also. We wanted to do something as regards dementia awareness, we heard about Dementia Friends Champions.
So we went to have a look at what they were offering, it really surprised me. It was a great info session expelling some of the myths and giving a bit of insight into what Dementia is.
It asks to turn understanding into an action no matter how big or small.
I now wear my badge with pride and use it to start conversations about what the word ‘Dementia’ really means.
Jayne and I have completed many sessions of our own now and have made over 300 dementia friends across the UK.
At the Champion training we attended is where we first met Peter Ashley, another dementia advocate and now a good friend.

Dementia Friends Launch in Wales :

We were asked to attend and speak at the Launch at the Millennium Centre, Cardiff, S.Wales on behalf of The Alzheimer’s Society.
We were very proud to be asked to do this as the Society have been a big help to us, we appeared on stage with Sue Phelps, director for Alzheimer’s Society, WALES and actress Ruth Jones.
I spoke about the importance of the initiative coming to WALES and the importance of understanding Dementia.
Sue Phelps read out on of my poems and did it proud, it was well received.

NHS Expo, Manchester :

We did a Dementia Friends Session with one of the hosts and then took part and spoke on behalf of Gill Phillips of ‘whose Shoes’.
We also met up with the great Tommy Whitelaw ( tommyontour) and the lovely campaigner and blogger Beth Britton.

Wrexham Dementia Awareness Event, N.Wales

Ian Lucas MP and his wife arranged an awareness event in the Guildhall; local businesses, Councillors and some of the Services were invited.
I did a talk along side two good friends of ours, Anita Moran and Chris Hodge ( who are both PA ambassadors) to those present, explaining about dementia and the need for more awareness to reduce stigma and give more support to folk with dementia.

Sheffield, England, Dementia Arts Exhibition :

Held every year in the University, art, poetry and models by anyone that has dementia is put on display. I was asked to bring some of my poetry along by the lovely Natasha Wilson, who a lot of you know on Twitter.
It was a great honour to show my poetry there along side some really talented and great work by pwd.

Dementia Friendly Communities conference, Leeds :

This conference was supported by DEEP, Dementia Engagement and Empowerment Project, They bring together groups of people with dementia from across the UK, they then support these groups to try to change services and policies that affect the lives of people with dementia.
They offered Jayne and I a free place at the conference and funded our expenses.
Because of them, 5% of attendees there, had a diagnosis of dementia and had a voice and a story to tell, I listened intently and was inspired.
I made my mind up what I now wanted to do. I also, I wanted to share my story and be an advocate for dementia, I realised that I too had a voice ! Thank you very much Steve Milton and Rachael Litherland for supporting me with my advocacy.
It was also the launch of ‘Dear Dementia’ a fantastic little book by
Ian Donaghy, our thanks to Ian for including us in his book.

The Alzheimer’s Show, Manchester :

This is where we supported Carers Call To Action,who Support the needs and rights for family carers of people with dementia through a shared vision.
We were honoured and humbled to support such a worthy cause, we spoke about our experiences, what support we all, carers and diagnosed, require and how the CCA are helping us to achieve this aim.
Thank you for looking after us so well, Rachel and Louise xx
We met, for the first time and spoke with, my Twitter friend Tommy Dunne and his lovely wife Joyce. Later we all listened to ‘meet the author’ Shibley Rahman, who was also a great friend from social media, talking about his book ‘Living Well With Dementia’. We all had a coffee with Natasha Wilson and Anna Tatton.
Thank you to Nigel Ward for a great show.

The Big Meet Up, Colwyn Bay, Conwy, N.Wales :

Pam Luckock, who actually lives down the road from us, (small world!) and Fran Ohara got in touch for us to speak at their big meet up.
It was full of professionals and service users (or citizens as they were called there) to ‘ join ‘ us up and get people talking to each other, sharing experiences to make services better for everyone, great day, met some lovely people.

Denbighshire County Council EMH Project workers Strategy Meeting :

We were asked to attend their meeting to give our views on the services that they provide and asked us to let them know how they could be better !
Our county is a bit of a success story where services are concerned and here is my chance to take my hat off to them !
Thank you Denbighshire !
Since talking to them and with their and our help, we have a new social group meeting, (in a pub of course like grown ups ! ) on a bus route, with a new one starting soon at the other end of the County very soon, a Cinema group and coming in the new year, A ‘mobile Memory Cafe’ joining up Rural areas and getting isolated people and carers together, something I’m very proud of instigating after a round table workshop discussion in the CCA conference !

The Halton General Hospital, Warrington :

We were asked to view and give some input to their brand new showcase Acute dementia Ward with my great friend Tommy Whitelaw !
what an honour !
It was amazing and Lee Bushell, the Estate manager, had done fabulous job !
Using colour schemes and lots of common sense, and the staff being given ‘permission to act’ it’s one of the best wards in the UK, Our thanks to Karen Dawber, Mel Pickup, the other Board members, and of course Lee for a great visit.
Also our great thanks to the Board of Governors for inviting us to host a Dementia a Friends Session for them.

Peer Reviewer Training, MSNAP, London :
(Memory Services National Accreditation Program)

My friend, Beth Britton gave me the heads up that MSNAP were looking for
PwD and their caregiver/spouse, relative to train as peer reviewers for the accreditation of Memory Clinics in the UK.
An excellent day, thank you Sophie and Emma, a great pleasure to see lots of other PwD attending too, a great turnout ! And nice to meet a new friend Chris Norris.

‘To whom I may concern ‘Online Program :

To Whom I May Concern (TWIMC) is an interactive theater program designed to give voice to people who have recently been diagnosed with a progressive brain illness such as Alzheimer’s disease. Using their own words and scripting, these individuals share their stories and experiences.
Thank you to Maureen, Laura and Stephen for giving us a voice and my great thanks to my friends David, Syvia, Teresa and Charee for sharing your experiences and lives with me.
This production can be seen on you tube.

Dementia Alliance International.org :

“Nothing about Us without Us” and “Of, for, and by people with Dementia” an international group of PwD who have got together and made their own group, promoting a world where a person with dementia continues to be fully valued, to build a global community of people with dementia that collaborates inclusively to:
1:Provide support and encouragement to people with dementia to live well with dementia.
2:Model to other people with dementia and the wider community what living well and living with purpose with dementia looks like.
3:Advocate for people with dementia, and build the capacity of people with dementia to advocate for themselves and others living with the disease.
4:Reduce the stigma, isolation and discrimination of dementia, and enforce the human rights of people with dementia around the world.
I have made some great friends for life in this group, Kate Swaffer, John Sandblom, Susan Suchan and Truthful Kindness amongst the many.
It was my great honour when I was asked to become and accepted to be,
a Board Member in the Summer.

Dementia Mentors .com :

A real pleasure to be a contributor to the site designed and run by Gary LeBlanc and Harry Urban, an excellent site with a great video section where PwD put up videos to help others, and where a mentoring service is available. I have the honour of hosting one of their online virtual cafes.

Young Dementia Uk Conference, Oxford :

YDUK are a national source of young onset dementia information and are always happy to promote other organisation’s news and events.
They have a full events listing of both national YDUK events and regular social events in Oxfordshire.
They are a huge voice and supporter of young onset dementia.
They provide some great services of their own too.
So it was an honour when Kate Fallows asked me to come speak for them, it was a great conference where I met up with old friend Ken Howard and some other friends, new and old, thanks to all involved for a great day.

Carers Call to Action Conference, Government House, London :

Always an honour to support CCA and the DAA, it was at this workshop we came up with the Mobile Memory Bus ! A great conference, always good to hear Alistair Burns, Clinical lead for Dementia in England talk.
A great varied conference where they had, including ourselves, an array of speakers with personal experiences, well done CCA !
Thanks to Our fiend Shibley for coming to support us and thanks to Louise, Peter,and Rachael for looking after us. It was great to meet Suzy Webster too, a great lady x

Alzheimer’s Society Annual conference, cardiff, S.Wales :

Our pleasure to speak for the society ( I am also an media volunteer for them) about the importance of Dementia Friendly Communities.
Lovely to catch up with Sue Phelps and Jenna, and to meet Jeremy Hughes CEO.
Thanks to Helen For looking after us.
The talk from us both was very well received and it was great to hear of all the fantastic things that are going on in Wales.

Alzheimer’s Europe Conference, Glasgow, Scotland :

Our big thanks to Life Changes Trust for their help in attending this major conference and for looking after us, we couldn’t have attended without you.
What can I say ! An excellent conference, 44 PwD dementia in attendance, meeting Helga Rohra and Agnes houston were our highlight, they both work so hard. Great to meet Peter Gordon too, a mutual friend of Shibley and mine from Twitter, along with lots of others old and new.
Our thanks to all the other great people we met, it certainly was a friendly conference and very informative.

‘Week in Week out ‘ program for BBC WALES :

Our thanks to the BBC and their Producer Tim Jones who put my mind at rest about the program and did an excellent job with it giving folk an insight into living with Dementia. Thanks also to the Alzheimer’s Society for recommending us, thank you to all of the nice people who got in touch afterwards.

Alzheimer’s Brace Research Conference, Bristol :

” A Hope for the Future” was the title of the conference, a very successful and well attended day conference hosted by Martyn Lewis.
We were invited to appear on a panel with Beth Britton to give some insight into dementia and discuss the importance of research.
Our thanks to Beth, Martyn Lewis and Mark Poarch the organiser.

WALES audit office Conference, Cardiff :

A conference and workshop bringing together service users and professionals. It was a real honour to hear the other side of service production and planning.
We gained a lot from working face to face with senior leaders from all over Wales and that they too gained an insight into how we access their services and where they can improve the services they offer.We did some filming for this which was used to promote discussion, later I was asked to come on stage and spoke to the conference to finish a very interesting day.
Our thanks to Mark Woods for his great help with the filming and to
Laura Young for looking after us on the day so well.

The UK Dementia Congress, Brighton :

The UK Dementia Congress, took place at the HILTON BRIGHTON METROPOLE, The conference covered areas like Evidence-Based Practice And Innovation, As Well As a Full Discussions Of Obstacles, Problems And Pitfalls.
DEEP groups made a huge contribution at their venue, DEEP joined together with the Carers Call To Action to lead the opening plenary session of the conference. Members of both networks talked about their experiences of dementia and what they needed from the audience. A film ‘Make a point about dementia’ enabled many more people with dementia and family carers to have their voices heard by the whole conference.
The members who spoke were Suzy Webster, Keith Oliver, Tommy and Joyce Dunne and ourselves, “you lot” as Norman Lamb spoke about us.
I later spoke about dementia as a disability and how our rights as such are not being met in a DEEP workshop.
It was an excellent conference, our thanks to the two Rachael’s, Louise and Peter Watson. Also thanks to Richard Hawker publications and all his staff.

Dementia Action Alliance UK, Central Hall Westminster, London :

Organisations who are committed to transforming the lives of people with dementia and their carers.
The Dementia Action Alliance is a movement with one simple aim: to bring about a society-wide response to dementia. It encourages and supports communities and organisations to take practical actions to enable people to live well with dementia and reduce the risk of costly crisis intervention.
It was an honour for us both to speak and close a very informative conference. It was very emotional at the end when we had a standing ovation.
Great to catch up with friends such as Shibley Rahman, Keith Oliver, Chris Norris and Peter Ashley. It was good to finally meet Ken Clasper who actually gave me a lot of inspiration early in my diagnosis.
Our thanks to Sarah Tilsed for looking after us.

Our upmost thanks to all the great folk I’ve met this year, virtual and real ! Very sorry if I’ve forgotten to mention anyone above that maybe I should have.
Thank you to all the people that have listened to our story and hope changes might be made because of it.
A big thanks to all the people that have attended our Dementia friends sessions ( nearly 300 of you)
Last but not least, thanks to Dr.Shibley Rahman and Ian Donaghy for including us in their books.
‘ Living Better with Dementia’ and ‘Dear Dementia’
Thank you to all that have helped and supported us throughout the year.

Talking about your diagnosis to your family and friends

Dealing with your diagnosis is hard – not just for you but also for those around you. When a person is diagnosed with dementia it falls on the whole family, even touching friends.
it may feel be easier not to talk about it. But talking about it can also help the way you feel about things. It’s the old saying, sharing is caring and if you want or need support there has to be a level of understanding.
A diagnosis of dementia often comes as a shock or sometimes even relief just because you now have a label, you now know why you are having problems.
Even if you have been half expecting the diagnosis it can still be a worrying and upsetting time. It will also be hard for those close to you, maybe even harder, This is the time to collect all the facts and info you can, give all of your family a scrap of paper to write down any questions that they might have, organise a group or family meeting.
You will still or should, want to remain as independent as you can for as long as you can. You will need a certain amount of help and support as the dementia progresses, so you need to make your wishes know and it is important to make sure that other people don’t take over your life when you can still manage it. Make sure that you are consulted on all matters that concern you. Make your own choices for as long as you can, you still need to feel able to retain your confidence and dignity, by explaining this your family and friends, they won’t overcompensate, which can be very easy to do.
You will need to discuss plans for the future with those who are close to you and with certain professionals.
If your family and friends do not already know about your diagnosis, you really need to tell them sooner better than later, it won’t get easier ! Try to tell them as soon as possible. At first, they may not want to believe you, would you ? I put a status on face book explaining what diagnosis I’d just had and difficulties I might encounter, I got to tell lots of friends almost immediately, email is good too.
If they get upset by the news. Try to be calm, maybe try and pick who you consider to be the calmest person in the family, tell them first and get some one on side as it were !
Try to chat about your own wishes for the future, but don’t ask people to make promises now that may be difficult for them to keep later. A good idea is to write your wishes down.
You may want to talk about end of life care, do so ! It’s very important to discuss this difficult subject. Pick your moment, be light hearted and reassure your family that you are not being morbid, you just want to share your thoughts to make it easier for them when the time comes.
Ask them what are their ideas on some of the stuff you’ve talked about, more minds are better than one, they might come up with thoughts that you haven’t.
It may even help if you can talk about your feelings to someone you trust outside the family, get an unbiased veiw, it can help immensely.
There are some good books out there that can help you explain to your family, you tube has lots of videos that explain dementia very well, stuff like this can only help, the more your family and friends understand the better.
Talking to your children or grandchildren may seem a more daunting, but you do need to explain what is going on in your life.
They may worry less once they understand what the problem is, which is all the more reason to have a discussion, it may help you clear things in your own mind too. Try to be honest, although they may find the news quite sad, they need to know that any changes you might experience are likely to be because of your illness, they may have completely got the wrong end of the stick so to speak, they might also think that it may be something they’ve done wrong, so you speaking and explaining may help more than you know.
A child can often cope better with the truth than most adults.
Children deal with difficult situations remarkably well, as long as they can understand what is going on and as long as they have your support, and support from other adults around them.
As I’ve said just be as honest as you can but don’t dwell to much on anything distressing and allow your children or grandchildren to ask as many questions as you can.
Children from the age of eight or nine can understand very difficult concepts, more than you’d sometimes give them credit for, I know mine did. They may ask very difficult questions but encourage them to do so, if they are talking or asking, keep communication open, listen to what they say, and try to answer them truthfully, If you don’t know what to say or can’t answer, just tell them you aren’t sure but you’ll find out and get back to them, but please do so, children don’t have bad memories 😊.
You may have to watch that their school work doesn’t suffer, concentration may suffer, so a good idea is to keep in contact with their teacher, so as you see, this need to know basis is getting bigger !
Sometimes a child will try to hide their feelings. They may have bad dreams or behave badly, these could be ways of coping and they maybe need a bit more support so just try to keep chatting, always ask if they have questions.
I’ve said or mentioned children a lot but with a bit of common sense most of what I’ve said can apply to teenagers, my 16 year old, once educated in what way my illness might limit me, never once ever told me again that I was repeating what I said, which really helped me, I personally don’t want reminding.
It’s things like this that can help you personally, because it is so individual, things need to be said, so that with understanding will come an action or reaction. Grief,sadness, loss, anger, irritation and impatience are also common reactions for anyone, adults and children.
But one has to remember that younger people or children maybe less skilled than adults at coping with these emotions. Try not to be upset if anyone in your life shows these emotions, it’s only going to cause upset to everyone otherwise, easier said than done, I know only to well.
Older children, in particular, may appear not to react at all. This may be because of embarrassment, or because they just don’t want to upset anyone. Just try to encourage them to talk, this will help them.
But never force the issue, some people just need more time, as will yourself sometimes. Everyone will need time to come to terms with new difficulties.
Don’t be afraid to use humour. We use humour a lot in our house, it really helps and costs nothing. Dementia can seem a very bleak and unfunny prospect but humour can keep many people going, we speak a lot about what Mr.Alz has done in our house.
By simply talking about dementia to your family, friends, neighbours and colleagues, you can help more people become aware of it and understand the condition. I know that when I was diagnosed, none of my my family understood it, so the wife and I are now big advocates for awareness, giving dementia a voice !
It also helps dispel common myths and misconceptions, for example, many people think dementia is a natural part of growing old, that it’s all about memory loss, most have heard of dementia but don’t really understand at all.
So with continued support and understanding from family, friends and various support services, people with dementia can have a full, rewarding and productive life. You don’t suddenly become in later stages, there is a beginning and middle to the illness too.
There is much that you can do in the early stages that will help make life easier and more enjoyable, for now and in the future.
I’m not saying any of this will be easy, we’ve had many ups and downs regarding family and friends, we’ve shed tears and still do, it’s a big learning curve for everyone !
Some friends have fallen by the roadside, but most I don’t see because I don’t visit them either, out of sight out of mind ! So don’t blame the illness on everything, but enough, I think living well with dementia is a story of it’s own.
So please have that talk with your family and friends,
the sooner the better ! 😊

Night time

Wide awake at five past three
What on earth awakened me
Why can’t I sleep, why can’t I dream
This is my life now,…..it would seem
Days rolling into, the darkest night
Surely this,….can’t be right
The endless nights and days, That never end
The bad dreams, that the dark dous’t send
Wandering around the house at night
Trying to find that wayward light
The handles rattle, the handles turn
What is outside you have to learn
Your feet are cold,they freeze like ice
Someone shouts ! That can’t be nice
I was only lost, without the light
I didn’t need such a fright !
I just want to sleep and dream no more
Just let me through, sleep’s dark, large door
The door I look for every night
The Door that’s always just out of sight
Then I’m back in bed
You’re stroking my head
The woman from my dream
My darling wife It would seem !
© chrisroberts

My write-up for Dementia Friends

Why Dementia Friends is so important to break down barriers

The Dementia Friends initiative is a very special thing it’s about breaking down the barriers and misconceptions that surround this illness.
The layout and training you receive is excellent. The first part of the training day is to make you a Dementia friend, once you’ve accomplished that it’s on with the training. It’s a very easy format with just enough information without sensory overload.
It’s quick and to the point without becoming too technical or boring. A selection of activities are also used to illustrate the problems people with dementia have in their daily living routines, reiterating the five points about dementia, which are :-

It’s not a part of getting old
It’s caused by diseases of the brain – the most common being Alzheimer’s
It’s not just about losing your memory
People can live well with dementia with the right support and understanding
There is more to the person than the dementia

The message of Dementia Friends came across really strongly and everyone was so enthusiastic. It’s a fantastic and simple idea that will make a real difference to the lives of people with dementia. It’s all about getting the message out there and expelling the myths and preconceptions that revolve around people with this condition.

By going around as many people and groups as we can we will be helping to improve the day-to-day lives of people with dementia and allow them to live normal lives for longer which in turn allows them more time at home with their loved ones, keeping people out of homes and saving the NHS millions! It has now rolled out to Wales where we, Jayne and I, attended the launch and actually ran an info session for Lloyd’s Bank for ITV in the morning prior. Watch the ITV interview here :-
http://www.itv.com/news/wales/update/2014-02-19/charity-launches-dementia-awareness-scheme/

So it’s up to us to take responsibility to change the attitude towards dementia; by becoming “aware” we can shift previous stigmas and misconceptions, creating a dementia aware society and creating dementia friendly communities.

By becoming Dementia Friends Champions, we (the wife and I) hope to play a part in this huge social action movement, and create 100′s of dementia friends.

It is estimated that there are over 45,500 people living with dementia in Wales; two-thirds of them live in the community. Yet sadly they don’t feel part of our community, but with help and support people with dementia can play an active part for sometimes many years.
It’s all about turning understanding into action, it’s about educating people.

As I said earlier the wife, Jayne, and I do our sessions together – as a team. Why you may ask, well it’s a necessity :-

It’s different, people quite enjoy the towing and frowing!
We work well together; we’re a team in the house and out!
But the biggest reason, is that she is there to support me because at the young- ish age of 52 years, I have Vascular dementia and Alzheimer’s, a form of mixed dementia, so if I can be a Dementia Friends Champion ,any of you can do it! So please do!
So you see it is possible to live with dementia, especially when you have understanding and support! Which is what Dementia Friends is all about and which is why we enjoy being part of this fabulous initiative.

Chris Roberts
@mason4233

Dementia Friends Champion
dementiafriends.org.uk

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My Day care update

Well after a long search, a very long search live finally found a care home, one with Wi-Fi I might add which is very difficult to find. It’s not ideal looking at my future but I’ve had a rant about that, I think everyone knows my feelings on the matter, but for there is no alternative so let’s just get on with what I’ve got for the moment .
The age group is very varied and there are lots of people in a moderate stage, so happy days ! At least now I got somewhere that I can go and have a day off once a week, time off from being me, time off from being on duty at home where the wife and children expect me to be me ! It’s getting such hard work trying to retain the old me. The time has come to stop looking back and hug the new me whether we like him or not.
Just sat in a care home I can switch off compleatly, become no one ! which I think will help to my stress levels , my idea is for every couple of days compleatly stress free will give me a few more days on the end total.
It’s a nice new elderly care home, with all mod cons, it has a lovely airy feel, they have several community rooms and a couple of quite rooms, a nice secure outside area and the most important – Wi-Fi !
Now that’s one decision that has been taken off my family ! No guilt about homes now or that’s the plan. I’ve got somewhere that I can get used to, get to know the home, the residents and the staff, so when the day comes I’m not carried off screaming and shouting to a strange place.
One less decision for my family to make because I’ve already made the decision I have chosen my own care home